Tuesday, October 11, 2016

This Book Could Help You Change the Mental Health System Forever: Insane Consequences: How the Mental Health Industry Fails the Mentally Ill

Now available  for pre-order.

I am proud to say Insane Consequences: How the Mental Health Industry Fails the Mentally Ill is now available for pre-order on Amazon and Barnes and Noble.  

This critically important book gives people who care about the seriously mentally ill the facts they need to be better advocates and provides specific guidance on how to force the mental health system to deliver better treatment. It documents the failure of the mental health system, tells who is to blame, provides you direct links to policy and treatment research, and describes specific actionable ideas to reform the system. The brilliant foreword by Dr. E. Fuller Torrey (Author, Surviving Schizophrenia) puts these proposals in perspective.

Please pre-order Insane Consequences on Amazon or Barnes and Noble.  For the record, 100% of my proceeds will go to Mental Illness Policy Org. and other organizations working to improve care for the seriously ill. I am not making a nickel on this, I am simply trying to help. It is 340 pages and we have kept the pre-order price low, considering the size of the book: $25 for hard cover and $11.99 for Nook and Kindle. Both Amazon and Barnes and Noble let you read a detailed description of the book and they include reviews of my past work.

(Note: if you buy it via smile.amazon, a portion of the proceeds will go direct from Amazon to the charity of your choice. I would suggest Treatment Advocacy Center or whatever is important to you.)

Thank you for considering pre-ordering Insane Consequences. I don't think you will be disappointed and I know you will be helping improve care for others who have serious mental illness. Thanks for all you do. Please share with others who care.

Monday, June 13, 2016

Pass a strong H.R. 2646 focused on seriously mentally ill

Statement by DJ Jaffe, Exec. Dir (6.14.2016)

 “H.R. 2646 sends the seriously mentally ill to the head of the line for services rather than to jails, shelters, prisons and morgues.”

“The Helping Families in Mental Health Crisis Act (HR2646) being proposed by Representatives Tim Murphy (R., PA) and E.B. Johnson (D., TX) starts to bring sanity to the insane mental health policies that are rampant in government. Historically, government agencies have ignored the seriously ill in order to promote “mental wellness” in all others. This bill starts to bring that practice to an end by focusing government on the elephant in the room: getting evidence-based treatment to adults known to be seriously mentally ill.  It replaces years of federal mission-creep with a dose of mission-control. That will help reduce homelessness, arrest, incarceration, hospitalization, and violence, while saving taxpayers money.” 

“We thank Representatives Tim Murphy, E.B Johnson, Fred Upton and Frank Pallone. We urge the E&C Committee to put a doctor at the head of SAMHSA and CMHS, fund Assisted Outpatient Treatment, increase the number of hospital beds, free parents from HIPAA Handcuffs and start to focus federal efforts on the elephant in the room: getting science based treatment to adults with serious mental illness, rather than on programs based on pop-psychology and pseudo-science.

(End of statement)

Assisted Outpatient Treatment (AOT) (See research summary: http://mentalillnesspolicy.org/national-studies/aotworks.pdf)
  • Cuts homelessness, arrest, incarceration, violence and hospitalization for the most seriously ill by 70%.  
  • Saves taxpayers 50% of the cost of care.
  • Only for the small group of the most seriously ill who refuse or are unable to comply with voluntary treatment and already put themselves or others at-risk.
  • Supported by Int’l Assoc. of Chiefs of Police, National Sheriff’s Assoc., SAMHSA, DOJ, AHRQ, NAMI, and others.

Reform SAMHSA and CMHS (See http://mentalillnesspolicy.org/samhsa.html)
  • According to SAMHSA’s former Chief Medical Officer:
“SAMHSA does not address the treatment needs of the most vulnerable in our society. Rather, the unit within SAMHSA charged with addressing these disorders, the Center for Mental Health Services, chooses to focus on its own definition of “recovery,” which generally ignores the treatment of mental disorders…There is a perceptible hostility toward psychiatric medicine: a resistance to addressing the treatment needs of those with serious mental illness and a questioning by some at SAMHSA as to whether mental disorders even exist—for example, is psychosis just a “different way of thinking for some experiencing stress?” (http://www.psychiatrictimes.com/depression/federal-government-ignores-treatment-needs-americans-serious-mental-illness/page/0/1)
  • SAMHSA and CMHS replaced the “medical model” with an internally invented “recovery model” that requires even the most seriously ill to “self-direct” their own care. (John Hinckley was ‘self-directing’ when he tried to get a date with Jodi Foster by shooting Pres. Reagan)
  • There is virtually no support for SAMHSA or CMHS other than from the organizations they fund that want to continue to receive funds free of an obligation to serve the seriously ill.  
Other ways to improve care for seriously mentally ill
  • Create hospital beds 2) Free parents from HIPAA Handcuffs 3) rein in anti-treatment activities of PAIMI.
We hope legislators will put a doctor at the head of both SAMHSA and CMHS like all other federal medical agencies. We also hope they will define "evidence-based," a term used throughout the bill to mean
“a program or practice that has independent evidence it improves a meaningful outcome in adults with mental illness or children with serious emotional disturbance.”   “Meaningful outcomes" includes reductions in homelessness, hospitalization, arrest, incarceration, violence, and suicide or other outcomes."
SAMHSA and CMHS rarely do any of that. The evidence they use is not independent, the programs are not for mentally ill, and the outcomes they measur are rarely the meaningful ones.

# # #

Mental Illness Policy Org. is a non-partisan, science-based think tank focused exclusively on the 4% of adults who have the most serious mental illnesses. We accept no government, healthcare or pharmaceutical company funding and are supported almost exclusively by families who have seriously mentally ill loved ones who the mental health system refused to treat and experienced heartbreaking tragedies as a result.

Monday, March 7, 2016

Deblasio policies cause NYC mental illness stabbings

Deblasio administration refuses to use Kendra's Law when needed

Our hearts go out to James Patrick Dillon, his family, those who were stabbed by him, and the  police who had to respond. Like almost all these cases, Mr. Dillon was already known to be seriously mentally ill, had a family that tried to help him get treatment, but could not get him treatment because the DeBlasio administration refuses to focus it's mental health efforts on the most seriously ill. 

Specifically, the DeBlasio administration has failed to robustly implement Kendra's Law. Kendra's Law allows judges to order the most seriously ill, who refuse treatment, to accept six months of mandated and monitored treatment as a condition of living in the community. Kendra's Law reduces homelessness, arrest, incarceration in the 70% range. It keeps patients, public and police safer. 

Our Oped in Manhattan Institute’s City Journal on how ThriveNYC ignores the most seriously mentally ill  http://www.city-journal.org/2015/eon1208dj.html

Our oped in NY Post on how NYC mental health officials ignore the most seriously mentally ill  http://nypost.com/2015/11/15/the-citys-dangerous-mental-health-dodge/

Our oped in Manhattan Institute’s City Journal on how NYC data shows it is failing seriously mentally ill   http://www.city-journal.org/2015/eon0805dj.html

Brian Lehrer (NPR) interview with DJ Jaffe on how NYC mental health officials decided to ignore violent mentally ill   https://www.wnyc.org/radio/#/ondemand/571653

Brian Lehrer (NPR) interviews Chirlane McCray and Dr. Gary Belkin about failure to use Kendra’s Law    http://www.wnyc.org/story/first-lady-chirlane-mccray-kendras-law/
Follow us on Twitter: @MentalIllPolicy
Join us on Facebook: Mental Illness Policy Org. 

Wednesday, March 2, 2016

Join Important March 10 Mental Illness Teleconference with Pete Earley

Dial (712) 775-7031 at 7PM EST on Thursday, March 10 and use Access Code 715149.

Mental Illness Policy Org invites you to join our popular evening teleconference interview series. DJ's next special guest will be former Washington Post reporteradvocate and author Pete Earley.

Pete will tell his personal story trying to get care for a loved one, and use his experience as a former reporter to explain how to get the media to do more and better stories about serious mental illness. He'll answer all your questions.

We hope you'll join us for this important call. Bring all your questions. Share this with your friends and social networks.

To join the call, dial (712) 775-7031 at 7PM eastern(!) standard time on Thursday, March 10 and use Access Code 715149.

Thank you for all you do to improve care for people with the most serious mental illnesses.

Monday, February 22, 2016

NYS Needs Kendra's Law & Psychiatric Hospitals. Don't let mental health industry close them

The two trade associations representing NYS mental health providers (NYAPRS and MHA) are having their annual rally in Albany tomorrow (Tue. 2/23). We OPPOSE their attempts to move mental health spending away from the 5% who are the most seriously mentally ill and towards the higher functioning. Their proposals to end Kendra’s Law and close state psychiatric hospitals puts patients, police, and public at needless risk. We will be in Albany on Tuesday to oppose raiding services that treat the seriously mentally ill.

1. Support making Kendra’s Law Permanent and Stronger. (S-04722/A01275).

While NAMI/NYS supports this, the trade associations do not. Kendra’s Law is NY’s most successful program for the most seriously mentally ill. It allows judges to order someone who already accumulated multiple episodes of arrest, violence, incarceration or needless hospitalization to stay in six months of mandated and monitored treatment while they continue to live free in the community. It is only available to those who already refused to accept voluntary treatment that was made available to them. It also allows judges to order community programs to accept these individuals into their programs. Kendra’s Law is proven to reduce arrest, violence, hospitalization and incarceration in 80% range each, cut costs to taxpayers and reduce stigma. 81% of those in it said it helped them get well and stay well.
S04722/A01275 make Kendra’s Law permanent, ensure court orders are reviewed before expiring, requires community directors to take reports from family members about loved ones who might benefit, and lowers cost by allowing patients to voluntarily stipulate to Kendra’s Law orders. The NYS Assoc. of Chiefs of Police support.

2. Oppose Closing more Psychiatric Hospital Beds.

The trade associations are supporting Gov. Cuomo’s budget proposal to close 225 more psychiatric beds that serve the seriously mentally ill. We oppose. The trade associations look at these beds as a bank account and want them closed so the savings can be given to their member organizations. But there are two problems with that. NYS is short at least 4,000 psychiatric hospital beds even if we had perfect community programs. So closing hospitals guarantees the sickest will not receive treatment. Secondly, even when some savings are given to community programs, they refuse to use them to provide actual treatment to the same adults who are being discharged from hospitals. Instead the funds are used on wasteful sideshows like educating the public, fighting ‘stigma’, identifying the asymptomatic, or funding programs with no evidence of efficacy. As a result, NYS has more mentally ill incarcerated than hospitalized. The percentage of prisoners in NYC jails with mental illness shot up 30% between 2010 and 2014.
We do support increasing housing options, but first we must increase those that provide 24/7 onsite support (group homes), versus the independent housing options supported by the trade associations that serve the higher functioning.

Tuesday, February 2, 2016

New Democrat Mental Health Bill Needs to do more for Seriously Mentally Ill

Quick Rough Instant Analysis of Comprehensive Behavioral Health Reform and Recovery Act of 2016’ an alternative to HR 2646.

MentalIllness Policy Org. will be studying the bill in detail over the next day or two. In the interim, here is our instant analysis.

Statement by DJ Jaffe, Executive Director of Mental Illness Policy Org. We thank the Democrats for introducing this bill, but note that it largely ignores reforms that could help the most seriously mentally ill. It is the seriously mentally ill, not the worried-well who cause added expense and are responsible for tragedies. Congress must focus on the elephant in the room: getting treatment to the most seriously mentally ill and this bill does not.

Summary.  This bill does a better job at ‘poor mental health’ than delivering treatment to people known to have the most serious mental illnesses. It maintains most of the failures of the existing system and layers more programs on top. Some are good programs, others not.  It fails to include the most important provisions of Helping Families in Mental Health Crisis Act (HR 2646) that help people with the most serious mental illness:

  • Assisted Outpatient Treatment (AOT): HR2646 bill provided $15 million for Assisted Outpatient Treatment which has been extensively independently researched and proven to reduce homelessness, arrest, incarceration in the seriously mentally ill, in 70% range[1]. This bill instead allocates $20 million to Mental Health First Aid (MHFA) which has been researched and not shown to help the mentally ill.[2] It is candy for the mental health industry.
  • SAMHSA: The failure of SAMHSA to focus on serious mental illness, it’s waste, have been well-documented by Mental Illness Policy Org and the E&C, O&I Committee. HR2646 largely disbands SAMHSA. This bill calls for yet another “study”. In the interim, it empowers SAMHSA even more. While HR2646 would require the head to be an MD, this bill creates a new bureaucracy within SAMHSA “Office of Chief Medical Officer”. It seems to make SAMHSA Administrator an Asst. Sec of Mental Health.
  • Hospital Care: Like, HR 2646, the bill codifies that managed care plans can pay for 15 days of hospital care for individuals in capitated payment plans. But it largely maintains the discriminatory provisions in Medicaid (IMD Exclusion), that prevent people in ‘fee for service plans’ (50% of those on Medicaid) with serious mental illness from getting hospital care when needed.[3]
  • Protection and Advocacy. The bill does not reform the Protection and Advocacy Program which funds federally funded lawyers in states who work to prevent care for the most seriously ill.[4]
  • HIPAA: The bill leaves HIPAA as is, but sets up procedure to create new regulations. Since the regs must work within existing legislation, they are not likely to have an effect. Families who provide care out of love to mentally ill will continue to be prevented from receiving the same info paid providers receive.

Congress can not be claiming to do mental health reform when it  ignores the most seriously mentally ill. We urge Congress to stop shunning the most seriously mentally ill.  Here are our ideas.

[1] http://mentalillnesspolicy.org/national-studies/aotworks.pdf
[2]  http://mentalillnesspolicy.org/samhsa/mental-health-first-aid-fails.html
[3] http://mentalillnesspolicy.org/media/bestmedia/imd-exclusion-washington-post.html
[4] http://mentalillnesspolicy.org/myths/mental-health-bar.pdf

Monday, February 1, 2016

Mark Salzer who gets funds from SAMHSA supports SAMHSA

Mark Salzer, Ph.D., who is Chair of the Department of Rehabilitation Sciences at Temple University wrote a surprising oped for the Philiadelphia Inquirer. It claimed, “SAMHSA has clearly served people with serious mental illnesses” and “The elimination or curtailment of SAMHSA would be a major blow to progressive mental-health policies in the United States.”

There were no real specifics and the massive evidence documenting problems at SAMHSA shows eliminating it and transferring it’s responsibilities elsewhere would likely improve services for the most seriously mentally ill. So Mental Illness Policy Org. decided to look into what might have led Dr. Salzer come to his conclusion.

Dr. Salzer’s CV shows that he and his projects receive over $4 million directly from SAMHSA.

It is not known if this financial support from SAMHSA influenced his high opinion of SAMHSA or he really believes what he wrote. It is not known if he disclosed what most would consider a serious conflict to the editors before submitting his oped. The oped itself made no disclosure.

Almost all the support, the only support, for SAMHSA seems to come from those who receive money from it or benefit from it. It is not surprising they want their sugar daddy to stay in existence. 

Following are the grants Dr. Salzer lists on his CV. Over $4 million are identified by him as coming from SAMHSA.
  • Principal Investigator. Evaluation of Friends Connection. SAMHSA CMHS Consumer-Initiated Services Collaborative Agreement (SM52355; $2,267,034; 9/98-9/03).
  • Principal Director. DELCO (PA) Self-Directed Care Project. Transformation Technology Transfer Initiative, SAMHSA. ($221,000; 5/1/14 – 6/30/15).
  • Principal Director. Enhancing the role of Pennsylvania’s Statewide Network of Certified Peer Specialists. SAMHSA Transformation Transfer Initiative ($107,000; 1/12 – 9/12).
  • Evaluation Co-Director. CABHI-States. SAMHSA States CABHI Initiative, subcontract to Mental Health Association of Southeastern PA. (1H79TI025346-01; $1,500,000; $156, 354 subcontract; 10/13 – 9/16).
  • Evaluation Co-Director. Philadelphia Homeless Initiative. SAMHSA CABHI Initiative, subcontract to Mental Health Association of Southeastern PA. (TI23520; $1,500,000; $150,000 subcontract; 7/12 –6/15).
  • Consultant. Infusing Peer Specialists into Pennsylvania’s Behavioral Health Crisis Services System. Transformation Technology Transfer Initiative, SAMHSA. ($221,000; 1/1/15 – 9/30/15).
  • Evaluation Consultant. Certified Peer Support Specialists as Healthcare Navigators and Wellness Coaches Within Federally Qualified Health Centers. SAMHSA Transformation Transfer Initiative to Michigan ($221,000; 1/12 – 8/12).
  • Evaluator and proposal consultant. Pennsylvania Statewide Consumer Network Grant. (Mary Kohut, PI). Funded by SAMHSA/CMHS (SM56338-01; $70,000; 10/1/04 – 9/30/06).
  • Principal Consultant. National Mental Health Consumers’ Self-Help Clearinghouse. Funded by SAMHSA/CMHS (SM56065-01 - Joseph Rogers, PI). ($495,000; 10/1/03 – 9/30/04).
  • Evaluator. Family Ties (Training, Instruction, Empowerment, and Support). Funded by PEW Foundation to Mental Health Association of Southeastern Pennsylvania ($210,000; 4/1/10 – 3/31/13)
  • Evaluation Director and consultant. National Mental Health Consumers’ Self-Help Clearinghouse. Funded by SAMHSA/CMHS (Joseph Rogers, PI). ($1,200,000; 10/1/07 – 9/30/10).
  • Evaluator. Keystone Pride Recovery Initiative. Funded by SAMHSA Consumer Network grant (5SMO59833-02) to the Pennsylvania Mental Health Consumers Association ($70,000; 10/10 – 9/13).
 He also does work for other entitites that get their own funds from SAMHSA. These are just a few. 

  • Consultant. Promoting Olmstead in Pennsylvania. Advocates for Human Potential ($20,000; 1/12 – 9/12).
  • Program Director. Philadelphia Disaster Response Network. Contract with Mental Health Association of Southeastern Pennsylvania ($22,751; 9/1/02 – 4/1/03).
  • Evaluation Director and consultant. National Mental Health Consumers’ Self-Help Clearinghouse. Funded by SAMHSA/CMHS (Joseph Rogers, PI). ($1,100,000; 10/1/04 – 9/30/07).

Most of the studies which Dr. Salzer is associated with above, seem to focus on peer support. SAMHSA’s own review of the research shows: The literature [on peer support] that does exist tends to be descriptive and lacks experimental rigor." We don't know if SAMHSA was referring to this research. SAMHSA funds other research.

The well-respected Cochrane Collaborative reviewed all the high- and low-quality data on peer support and concluded
Involving consumer-providers in mental health teams results in psychosocial, mental health symptom and service use outcomes for clients that were no better or worse than those achieved by professionals employed in similar roles, particularly for case management.
Another study, also not by Salzer, "adds to the evidence suggesting no short-term incremental benefit (or harm) from peer services beyond usual care.” 

In spite of this research casting doubt on peer support, SAMHSA continues to fund it. Is that why SAMHSA supported researchers and consumer groups want to preserve SAMHSA?